Yes, I read it. I know the story of the woman who tried to commit suicide, and kill her autistic daughter at the same time. I’ve actually spoken to her a few times in the past, as she had a lot of information to share. I will not comment, or judge on what she has done. I life the life. I am as a friend said…”one chapter away from that.” I am not saying there is horrible violence in my house, but I have made it so it isn’t that way. (As best I can) Can there be violence? Yes. Have I been hit? Yes. Does it hurt? In every way. I put little restraints on my autistic child. I make her environment as easy on her as possible. If I challenge that…I usually pay the price. (and so does my son) The form of payment for us is usually a major meltdown with breaking things, throwing things, and occasionally hitting. It hasn’t happened a lot, but it happens. I hold my breath every day when she leaves for school that she will A) follow the rules, B) not hit or hurt someone, and C) make it through the 8 hour day with no meltdowns or calls to me. After 10 years of living it, it has become our “normal.”
I used to spend my time trying to make her be less rigid with schedule, and less anxious about things. Then I became so overwhelmed, that I just decided to make life easier for all of us. We schedule our days to the point where I only need to let her know ahead of time if something is different for us, in our daily routine. This could be soccer practice for my son, a meeting, a babysitter coming, or just an errand needing to be run. If I don’t, we pay the price. I live the life. It’s exhausting as a single parent. It’s exhausting as a mother. It’s exhausting as a brother. Autism is exhausting, and overwhelming. I can’t even imagine how my daughter feels on a daily basis facing these challenges.
This brings up a whole other issue of what will happen. What will happen to her when she is grown? WHERE will she go? I want her to live a full life filled with happiness and without anxst. But, I seriously doubt this child will ever be able to be on her own. I can see the writing on the wall with this one. Where are the homes for adults with autism/PDD-NOS? They do make it to adulthood and then what? I’m assuming she will outlive her parents, and then what will happen? What are we doing as a society to fix this? The stats are growing each year, and something has to be done.
Yes, I read it. I can sympathize with her. I really can. I live the life.